Resources for the Journey
I offer these resources up cautiously. I find that it is important I pace myself when reading about LBD. It can be discouraging and scary … I remind myself that everyone’s journey is different. Some people live up to 20 years with LBD. I like to keep selective facts in my sights. I set my goals high.
I read both about Parkinson’s and Lewy Body Dementia. In my case I deal with both futures.
I get a few emails a week with tips from MyParkinsonsTeam. They are quick snippets to read and send me off to other research to check out. There are a number of ways to connect with others. I enjoy the ‘stories’ section. Interesting to hear how PD plays out in other people’s lives.
There is SOOO MUCH information at LBDCanada. The page is curated by Timothy Hudson. He cared for his wife from 2008 to 2016 as she lived with LBD. He is involved with a number of other LBD organizations worldwide. He put his skills in communication to work to provide information, experience and guidance.
This is an American site based out of Georgia. It has many scientific studies, articles and advertises conferences for health care professionals.
Sharon is a blogger who has Parkinson’s. She does a great job of writing a blog about living well with Parkinson’s. She also offers Sunday morning webinars. I liked this site for the window it provided on so many other bloggers sharing their experiences.
I have benefited from the many webinars offered through this website. They are free and can be watched any time. I liked being able to see the people sharing their stories and the interactions between presenters. There is lots of information about advancing research.
This group also provides great webinars. I am on their mailing list. I find that a plus as it reminds me to check out their latest posts. There is a wealth of printed information, a support line and guides to finding local resources and supports.
